*Note: my previous goal for a Freewheel wheelchair attachment is no longer needed (I hope) because someone is helping to fabricate a similar tool for cheaper. New goal: I bought a super-fixer-upper home! With your help, I can fix it up. Some current needs are: installing a new bathroom sink, replacing a bathroom vent, fixing moisture issues under the house, painting, installing a new circuit for a dishwasher, widening doorways & much more.
I'm a writer & blogger, speaker, model, & chronic disease advocate living with ankylosing spondylitis, major depressive disorder, anxiety & PTSD. I've given a TEDx talk, spoken at statewide marches, on healthcare panels, with pharmaceutical organizations, in legislative hearings & at press conferences. My story is featured in a documentary: Becoming Incurable, out on Amazon.com in December, 2019.
Welcome to my Ko-fi Page. If you think my content is valuable and should be supported - whether that's content on my blog, on my social media channels, or perhaps you've seen me speak at an event - please consider supporting what I do. I am permanently disabled and unable to sustain myself through work, but my life's work is to make ankylosing spondylitis a household name and change the conversation around chronic disease and disability. This 'work' gives my life meaning and purpose.