I’m always on the hunt for adventure either through worlds I create in my work or in real life however, IRL has meant facing systemic barriers. I was born with Limb Girdle Muscular Dystrophy, a degenerative muscle disease. Travelling in the UK in a power wheelchair is not only a nightmare, its expensive & has been very traumatic. I'm often forced to challenge, plead or negotiate to be allowed onto trains, buses or taxis. Its an exhausting & frustrating exercise when all I'm trying to do is live.